As the Covid pandemic raged in March 2020, Sean and Claire Weldon felt their whole world was falling apart when the dad was diagnosed with devastating condition
Image: Claire Weldon)
A family have been left heartbroken after their dad was diagnosed with a devastating condition.
Sean and Claire Weldon lived happily with their family of three children and they admit life was “pretty normal”, Birmingham Live reports.
But as the pandemic raged in March 2020 they felt their whole world was falling apart.
Sean was then devastated after being diagnosed with Motor Neurone Disease (MND).
There is no cure for the condition and it has changed family life beyond recognition.
Claire, 36, had a job in a local café while Sean, 44, worked as an asbestos remover.
Now things look very different for the pair and their children, who are aged nine, 11 and 13.
Claire told BirminghamLive : “I had never really heard of MND until he was diagnosed,” Claire said. “It felt like our whole world was falling apart.”
The pair got married in July 2020 – as soon as they could after lockdown eased. This was one of many things that changed since Sean’s diagnosis.
“We kept it from the kids and our friends for a while just until we could get our own heads around it,” Claire went on.
“But we didn’t want it to beat us so we set out on making as many memories as possible.
“Getting married was one of them and we have been on holidays with the kids.
“These have been limited [in terms of] where we could go as Sean is in a wheelchair. He could use a mobility scooter at the time but now can’t.
“As a family we all support each other. I’m his sole carer so it can be challenging but we work though it together and the kids have been amazing.”
When Claire says she doesn’t want the disease to beat them, she means it.
The 36-year-old has launched a GoFundMe to raise money for treatment in the hope it will give her husband more time.
She said the family had been doing a lot of research into medication from different countries and wanted to get treatment in New Jersey.
They have spoken to another MND sufferer that has lived with the disease for eight years through the same route.
Claire said the family had been left “desperate” and explained how some people with MND can expect to live between two to five years.
According to the NHS, the condition eventually leads to death but how long it takes to reach that stage varies a lot.
Some people live for many years or even decades with motor neurone disease, the NHS website says.
“Sean has already lost his ability to walk and move his arms,” Claire explained.
“His voice is going now. It breaks our heart and we just want to try anything we can.”
Claire said she wanted to tell the family’s story to raise awareness of the “cruel” disease.
“If people could donate or even share, this is treatment in America that could possibly give Sean that extra time with his family,” she added.
“We are desperate to try anything as people with MND don’t get long.
“It’s coming up to two years [since the diagnosis] in March but he first noticed symptoms three years ago in May.”
Claire’s GoFundMe page reads: “Sean was diagnosed with Motor Neurone Disease on March 4th 2020 with no cure for this life-limiting awful illness.
“Since then he has lost all ability to use his body. He can’t walk or move his arms and is slowly losing his speech.
“He has three young children aged 13, 11 and nine and would love nothing more than to watch them grow up, have children and get married.
“It breaks our hearts to know there is nothing that can be done so we have been doing a lot of research into medication from different countries.
“With a bit of help, I have sourced information from a friend who knows someone with MND. They have been getting treatment from America, New Jersey.
“He hasn’t got any worse and has had it eight years now. Obviously, it is not a cure but could give Sean that time in which a cure could be found or extra time to watch his children grow.”