Sarcoidosis highly affects Black women; efforts to find cure intensify

Via Peters

Intermittent breaks — they’re what Antoinette Miles-Booker counted on to get from the basement to the first floor of her home. Gone were the days of walking a distance to grab lunch in Baltimore’s Inner Harbor with co-workers downtown.

Her health was declining. For months, she endured fatigue and weight loss, and her voice deepened. She’d wake up some nights and find her husband praying over her. 

Then came the first outpatient procedure, a wire put into her nose and down her chest. Health professionals thought she had lymphoma, but a bone marrow biopsy revealed an elusive culprit: sarcoidosis. 

“That was the worst thing that I think I have ever gone through health-wise,” Miles-Booker said. 

Sarcoidosis is a rare disease characterized by the growth of inflammatory cells called granulomas that appear in one or more organs. It most commonly affects the lungs. Miles-Booker never heard of the disease before her diagnosis. She joined the 150,000 to 200,000 people in the U.S. who have been diagnosed, including the late comedian and actor Bernie Mac, and actress Jeryl Prescott Gallien, who has been vocal about combating the disease. 

Sarcoidosis disproportionately affects African American women. They’re more likely to have severe cases of the disease and higher hospitalization and mortality rates. The disparity has heightened efforts by survivors, nonprofits and medical professionals to increase research and educate — and to provide support and share real-life testimonials about navigating the complexities of sarcoidosis.

Next Post

There’s a Mental-Health Crisis Among American Children. Why?

Unfortunately, that means letting go of the popular notion that a return to “normal” for children — in-​person schooling, no more masks — will reverse those trends. In fact, such measures may compound the stress many students already feel, says Lisa Fortuna, the U.C.S.F. chief of psychiatry at Zuckerberg San […]