13-year-old Killian McCarty has a rare form of leukodystrophy. He’s a constant inspiration to his mom, who is raising awareness to find a treatment and cure. MERIDIAN, Idaho — When Killian McCarty was born thirteen years ago, his parents were elated. He was their first child, and all signs pointed […]
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Kansas City boy, Charlie Fry, enters drug trial for rare disease
There is renewed hope for a Kansas City boy facing a rare disease. KMBC 9 has been following Charlie Fry’s story for more than two years now. His mother explains how a drug trial is bringing promising results as his family fights to fund a cure.”It was the most exciting […]